Priya Nambiar·
Why EDS Is Classified as a Rare Disease Despite Underdiagnosis
The "rare disease" label for hEDS masks a condition far more common than doctors expect.
The latest in
Priya Nambiar·
The "rare disease" label for hEDS masks a condition far more common than doctors expect.
Priya Nambiar·
Priya Nambiar·
Solange Tremblay-Osei·
Declan Murtagh·
Priya Nambiar·
The most common EDS subtype lacks the genetic marker that confirms every other variant.
Marcus Vael·
Diagnostic bias and clinical assumptions are masking EDS in people assigned male at birth.
Marcus Vael·
Ninety-four percent of hEDS patients were first misdiagnosed with psychiatric illness.